Questions asked over care shortcomings for people with learning disabilities in Brighton and Hove

Brighton and Hove is falling behind its neighbours when it comes to providing annual health checks for people with learning disabilities.

In the past year, 799 – or 54 per cent – of those registered as having a learning disability had an annual health check, missing the county-wide target of 67 per cent.

This was more than in 2019-20 when just 38 per cent of people registered as having a learning disability had an annual check-up.

The figures were revealed in a joint report by the clinical commissioning groups (CCGs) for Brighton and Hove, East Sussex and West Sussex into deaths of people with learning disabilities.

The figures for East Sussex and West Sussex were 71 per cent and 73 per cent respectively.

At a meeting of Brighton and Hove City Council’s Health and Wellbeing Board yesterday (Tuesday 27 July), Labour councillor Carmen Appich asked why the city was so far behind its neighbours.

Brighton and Hove CCG’s clinical chair Andrew Hodson said: “Even though there are small bits of a health check that makes up a whole, each part of those make up to incredible gains in improving patients help and reducing mortality in the long term.”

Dr Hodson added: “They are really important. They have always been a focus. There has been an improvement but we need to do better.”

The report said that the pandemic had highlighted the “significant health inequalities” experienced by people with learning disabilities.

From April last year to March this year, covid-19 was the most common cause of death for adults with learning disabilities.

In the previous year, pneumonia was the most common cause of death and in the past year it was the second most common cause.

Since February, adults with learning disabilities have been eligible for the coronavirus vaccine – and locally, by April, 86 per cent of them had had their first jab.

The Health and Wellbeing Board – which includes councillors and representatives of the CCG, NHS trusts, voluntary organisations and Healthwatch – was given examples of people who had died during the pandemic.

Picture courtesy of Wiki Commons

They included “Jack”, who died in hospital of covid-19. He was described as a “happy soul” who did not understand the need for such frequent hand hygiene during the pandemic.

Another example was a 42-year-old woman called “Ula” who died in hospital from pneumonia.

Her death was a result of complications linked to spinal curvature and swallowing difficulties.

Green councillor Sarah Nield asked why people with learning disabilities were more likely to die from chest infections.

CCG chief nursing officer Allison Cannon said that they often had difficulty swallowing and could end up with increased secretions in their lungs.

In the past year, 122 people with learning disabilities died across Sussex, with covid accounting for 29 of those. The average age of death for women was 59 while for men it was 58.

Councillor Sarah Nield

Reviews into deaths in Sussex found that three had received the highest score for quality of care while 21 indicated a good level of care.

Most reviews, though, found that people received “satisfactory care” and improvements were needed in end of life care.

A lack of face-to-face contact because of the coronavirus pandemic contributed to issues with care and support.

In two cases, the reviews considered poor quality of care to have had a “significant impact” on the person’s wellbeing.

Recommendations included ensuring people were not over-medicated and that doctors should review their medication annually.

Medics should also record more information in people’s notes about issues with swallowing.

  1. Nathan Adler Reply

    The City of Sanctuary, a city of inclusivity except when it comes to those with a disability. In the past 2 years we have had the home to school transport scandal, the failure to consult on active travel ‘dangerous’ blue badge parking bays at Hove seafront and now this. Councillors bleat on about protecting vulnerable groups and yet they consistently fail the most vulnerable in our community. Brighton really needs to try harder and needs to get it right.

  2. Anonymous Reply

    Hi. I live in a supported-living flat. Even though it’s beautiful, what normally typically happens in such beautiful surroundings, you find that you are paying a price for it. As in sacrificing my own money. When I say “Sacrificing my own money”, I mean that the staff are just suddenly asking me to fund their holiday breaks. Err, £200 of my money to be exact. This should be made illegal. Supported living staff need to be asking the UK government to fund their holidays. I’m no-one’s cash cow thanks very much. 😠 🤬. Go to the government and ask them to fund your holidays. Don’t be asking vulnerable service users. This has made me lose such huge respect that I once had for supported-living staff. And the fact that we’ve just come out of lockdown. The blatant disregard for us people with learning disabilities is obvious to see. Even blind people could see it coming. Stop asking vulnerable people to fund your holidays. Ask the government instead. We can’t afford to be funding other people. I can’t stand all of this disrespect for our own personal needs. Apparently the supported-living staff are more important than my own family. I don’t think so. I’m not stupid. I’m just trying to speak up for not just me, but everyone with a learning disability who gets used as a cash cow to fund staff holiday breaks. And they thought we were dumb. No way.

  3. Caitlyn Reply

    Brighton council is full of people who sound worthy when they talk, but their actions speak louder. Time and again, this council has shown itself to be ‘disablist’ at best, and in reality, it seems to know those with disabilities, and those who care for them, are time-starved, often struggling financially, and so easy to walk all over. Every year, respite care seems to be offered up for cuts in their budget, and it usually takes the Tories (surprisingly) to sort that out. Labour and the Greens say they care. Maybe they should show it. Likewise, the NHS around here, which for a caring service has an approach that wreaks of negligent at times and sometimes even cruelty, especially for those with mental health or learning difficulties. Sorry, rant over! It’s just the sheer hypocrisy rankles.

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